Top 10 FASD Blogs & Websites

TOP 10 FASD BLOGS & WEBSITES

I would love to think that my website is the only information hub about Fetal Alcohol Spectrum Disorder and the treatment of the disability, but that would be pretty darn ignorant and nothing further from the truth.

I, like so many of you, searched the internet for hours and hours looking for information and answers about fetal alcohol syndrome and if there were other people going through the same thing I was as a caregiver.

The truth of the matter is that the only way were going to get the masses to understand our kids, is to be as educated as possible,and in order to help you with that, I’m providing you with The TOP 10FASD BLOGS & WEBSITES  that I read and use for my own growth and education about the madness that is Fetal Alcohol.  There are some great technical websites and blogs by other caregivers who are fantastic writers and even better entertainers.

So, without further a due, here are my top 10 favourite FASD website and blogs.

10. Losing my Mind

http://www.lordgrantmeserenity.blogspot.com/

This a blog from a caregiver named Barb who has four adopted children: Akila-12, Imani-11, Hezekiah-9 and Zeke-8.  Barb is a great writer and is easy to relate to.  I am a big fan, so please check it out and if you like her blog, don’t be afraid to let her know.

9. Easy to Love But Hard to Raise

http://www.easytolovebut.com

This blog isn’t just FASD specific, however it has a lot of good information about raising kids with invisible disability’s. They also have a book out by the same name. I have read it and I suggest you do to.

8. Much More than Mom

http://linda-rosenbaum.blogspot.com/

Linda is a great writer and touches on relevant topics associated with being a caregiver. I featured one of her posts on my site and it received fantastic reviews. Check it out for yourselves.

7. MOFAS – Minnesota Organization on Fetal Alcohol Syndrome

www.mofas.org

This website is not only really nice to look at, but it’s filled with great fetal alcohol content. They have the Virtual Family Center which you have GOT to check out. Everytime I visit their site, they are adding new and valuable features.

6. FASD Justice

http://fasdjustice.on.ca/

Ok.  So, its not a matter of “if” your loved one with FASD gets involved with the justice system, but often a matter of when, so you may want to make sure you’re prepared. This website will definitely help you do that. This website has sections on everything from help about the  investigation, pre trial and bail. They also have scrolling soundbites on the left side of the page… and you know how much I love soundbites!! Yoink!! I’m going to use some of those.

5. FAS World

www.fasworld.com

Founded in 1999 by Brian Philcox and Bonnie Buxton. This website has tons of great resources and valuable insight. I really like the feature where you can look up various support groups.  Bonnie and Brian also run a support group in Toronto, ON Canada. We have a long way to go to have Fetal Alcohol Spectrum Disorder recognized, and without these two pioneers we would be a lot farther back.

4.Edmonton Fetal Alcohol Network.

http://edmontonfetalalcoholnetwork.wordpress.com/about/

I actually was able to visit this centre last year during my vacation to Edmonton. All I can say is that they know what there doing!!  They have also written an excellent booklet called, ‘Strategies, Not Solutions’ and you can download it for free!  So, what are you waiting for – go get it.

3.Wounded in the Womb

http://www.winnipegfreepress.com/special/fasd/

If you are not aware,  the province of Manitoba are amongst the world leaders in awareness and it helps when you have a newspaper like the Winnipeg Free Press helping with send out the message. So much so, that they have their own webpage about Fetal Alcohol. It’s chock full of delicious articles for you to devour over a morning coffee.

2. FAS Link

www.faslink.org

This website is done by non other then the godfather of fetal alcohol himself, Bruce Ritchie.  Bruce’s website is filled with excellent articles and research done by Bruce. He also has built one of the largest online forums about fetal alcohol on the internet. If you are looking for both education, answers and a devoted community, then you’d better check this site out.

1.     The FASD Learning Series

http://www.fasd-cmc.alberta.ca/education-training/fasd-learning-series-2010-11/fasd-promo

If you really want to become a jedi master about Fetal Alcohol – Go here and learn from here. This website is your own personal FASD conference taught by an all star professional and caregiving cast.  Most of the videos are an hour long and sometimes, to much for me and my ADD, but the beautiful part is that you can press pause. Also, make sure you keep a note pad near, you’re going to want to write down some of the epic insight into fetal alcohol and issues that go with it.

 

Well, there you have it. It should be no secret now as to where a lot of what I know comes from. Having said that, it’s up to you to learn and apply what these blogs and sites are teaching you. If you do that, you will be on your way to becoming just what your loved ones need – Armed and Dangerous with your new found knowledge!

 

Call To Action
If you know of a website that you think is pretty sweet that you use and visit often, then by all means let us know what it is by putting it in the comments section below.

 

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11 comments

  1. I was also going to recommend Teresa Kellerman’s website. She is the adoptive mom of a, now adult, son with FASD. She is not only an incredible mom with an amazing website, she is also a wonderful speaker and educator.

  2. Congratulations on taking the initiative of naming the TOP 10 FASD BLOGS & WEBSITES and BRAVO to all the adminitrators of those blogs and sites.

    One mom who adopted a child with FASD, wrote to tell us she was pleased we included “it helped those with FASD…” in the promotion of our Kid Companions Chewelry because her child really benefitted from chewing on his. She felt it satisfied his need to bite/chew and helped him be more calm and content.

    May I tell you about Kid Companions Chewlery also: Recommended by parents and occupational therapists, Kid Companions benefit individuals who MUST bite, chew or fidget. They are safe, bpa, phthalate, pvc, lead and latex free. Kid Companions are stylish and discreet allowing the user to fit in. They are made with FDA approved materials, sourced in USA/Canada, made in Canada and sold to the world! http://www.kidcompanions.com Thank you, the best in 2012!

  3. Wahoo! My girlfriend Barb made the list at Loosing My Mind. Can I encourage you to link over? She’s a real person who really loves her FASD daughter and is walking through the hard things daily.

  4. I don’t normally comment but I gotta say thanks for the post on this amazing one :D.

  5. http://howtocooklikebrooke.blogspot.com/2012/11/fetal-alcohol-syndrome-diet-discipline.html

    My daughter has FAS and she is doing very well. Her doctor is amazed by her progress. I have written some things on my blog about how we have helped her brain develop. At age 3.5, when she came from Eastern Europe, she was developmentally about 15 months old. Now at age seven, she is doing very well. She understands cause and effect, she has an amazing imagination, and she has an incredible memory.

  6. I am a grandmother raising mentally disabled grandchildren in the city of Hamilton, Ontario. Their disabilities include FAS, ADHD, intellectual and learning disabilities, and behaviour and anxiety disorders. For the past seventeen years I have been awed by their struggles and challenges, and frustrated by my inability to locate services related to their needs. So, now the two eldest are teens, I have found the time to document our struggles on my website http://www.challengedhope.com, and to offer information on services to other caregivers who are going through similar circumstances.

  7. I have just read this article and although I have yet to visit these sites, I trust they will teach me well. The reason I am commenting now is because I have just recently met Jeff at the 2013 Alberta FASD Conference in Calgary, AB, having attended his presentation titled “Social Media and the Caregiver”, just yesterday morning, Tuesday Nov 19th. As a parent caregiver of teen twins who embrace life with this disorder, I was elevated beyond my expectations by Jeff’s attitude, understanding and genuine commitment to this community. I wish Jeff continued success in advocating awareness and learning more about FASD, especially the genius that is hidden within. I know of many challenges both caregivers and the true experts of FASD, all those baring the disorder, endure, but I have also come to appreciate many positive and meaningful blessings they derive into this world. Some would believe Fetal Alcohol Spectrum Disorder is preventable, and in another world it might be, but here on earth it is not only un-preventable, I trust it is divinely intended to bring, among other things, greater appreciation to the power of compassion. When my boys are not burdened with the rejection and humility of un-acceptance, they are brilliant in extruding from others and themselves a compassion unparalleled in our defunct mainstream. That said, I also trust that the true disorder is not in the barers of FASD, but in our global societies inability to accept and embrace all God’s children, regardless their inflictions and genius. Understanding and accepting ought to be the focus, not prevention and treatment. These will come unto themselves when the former are embraced. And to the mothers and fathers and grandparents who feel the guilt of contrition, recognize your focus and the truths of FASD. Forgive yourself, and join in the pursuit of its fruit, for where there is breath there is worth. As humans we are intended to make mistakes, otherwise we would all be flawless.

  8. I had the opportunity to hear Jeff speak at an FASD conference in Alberta, Canada. He was so positive and very well received. I wanted to share a couple of things for caregivers and individuals living with FASD. The book, “Adopting a Child Living with Fetal Alcohol Spectrum Disorder” (Lawryk, L.) provides a huge list of physical problems that are often not identified at the time of medical evaluation. It turns out that many of these physical issues can actually look like defiant behaviour if not appropriately recognized. Here at the OBD Triage Institute, our goal is to focus on the whole body disorder, not only brain dysfunction. This way the parent is able to create individualized strategies that are much more effective than guesswork. I hope that helps, and thanks to Jeff for all of his hard work and support of our FASD communities.


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