Flying with Fetal Alcohol

47 years, that’s how long it took until R.J. Formanek officially received his diagnosis of Fetal Alcohol Spectrum Disorder. Things haven’t always been smooth for R.J. I can only imagine what it must have been like living with organic brain damage and not even knowing it.

Despite all the struggles that go along with having a little known, invisible physical disability, R.J. is proof that with the right team and the right environment you can be a successful adult living with a Fetal Alcohol Spectrum Disorder… and by all accounts R.J. is certainly that. I connected with R.J. via Skype. Check out the interview below.

I told you this guy is a pretty cool cat, right? Keep up the great work R.J.
I can’t wait to see what you do next! If you would like to join the group Flying with Broken Wings or Red Shoes Rock FASD, you can do so by clicking the link below:

https://www.facebook.com/groups/FASDaFlyingwithbrokenWings/

https://www.facebook.com/RedShoesRock/?fref=ts

Don’t forget to leave a comment and let R.J. know how awesome he is too!

Thank you so FLIPPIN’  MUCH!

Jeff Noble

 

 

 

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6 comments

  1. Hi Jeff! Just wanted to tell you how much I enjoyed your interview with R.J. I have been a group member of R.J.’s support group, Flying With Broken Wings, since the beginning…. Fabulous people with outstanding support and educational knowledge! I had never seen an interview with R.J., before. He is such a wonderful man and it was awesome to learn about his story. Thank you for sharing him with us and for the superb job that you put forth in order to bring all of us the gift of community and knowledge and friendship. It really helps to know that we are not alone as parents and our precious ones are not alone, either. You and R.J. are truly blessings to each one of us. Thank you both!

  2. Hi Jeff,
    Awesome interview! It was so refreshing to hear RJ. It’s early Xmas eve day and this interview couldn’t have come at a better time. In fact, I’d love to save it and use as a reference. I consider both of you to be leaders in this world of FASD. Brilliant interview topics and responses. Thank you so much and Merry Christmas! Beth Wagner

  3. Thank you so much for sharing your interview with RJ. As a caregiver it gives me hope for my son and his future. We tend to hear so much of the negative side of FASD so it’s wonderful to hear about the positives and the success stories.

  4. Jeff & R.J., thank you so much for sharing this important message.

    I am raising my 8 year old grandson who has been diagnosed with full FAS (has all the features & has effects in all areas of the brain). He has so many incredible strengths, but needs a lot of supports to be successful. I think his greatest strength is in his ability to love & accept others just as they are, no judgements. I think this will allow him to bypass a great many issues, as he already knows how to draw out the strengths in others.

    Thank you for expressing that it’s ok to struggle in some areas, that allowing those you trust to support you isn’t failing. My grandson struggles with the need to prove himself (to extended family members & others that expect him to behave in a manner congruent with his chronological age) & needs to hear the message that accepting help is a good thing, that it reduces the symptoms so that they are manageable.

    I fully expect to be in this for the long haul. My grandson is the greatest blessing in my life & I am so grateful to have him with me. I am looking forward to learning & growing with him for many years to come. Thank you for providing a positive road map for our journey.

    R’Lynn Gore
    Anchorage, Alaska

  5. Thank you everyone for your kind words. It really means so much when sharing can help others not feel as if they are all alone, because together we are making this happen for so many.
    We have a lot of work to be done yet, but we ARE getting there, thanks to people like yourselves.
    Thank you, once again.
    RJ


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