Even THE BEST CAREGIVERS need A reminder from time to time!!

One of the 4 Pillars of FASD Success that I write about in my free report is training. Training is one of the most important aspects of being a successful caregiver. Getting properly trained about Fetal Alcohol Syndrome is imperative to understanding one thing: why your kids drive you batty. Well, that and why your kids behave the way they do. So, instead of getting frustrated by primary characteristics, (the behaviours that come with the disability, ie. short term memory ) with proper training you will be able to identify the behaviours and make the appropriate adjustments. And do yourself one more favour – train, train and more training! You must continue to learn about FASD because what often happens is we attend a great, super motivating training, we get all excited and we go home and put the new strategies and ideas in place, we lower our expectations and things, well… they go ok. The strategies work! Then, over time we tend to increase our expectations of our folks that are affected by Fetal Alcohol Syndrome and the same thing happens all over again: your stuck and your kid is driving you batty again. We’re back at square one. So, where do we go to get all this training and education? I know just the spot and I am going to tell you all about it.

There are so many options on the internet for information about Fetal Alcohol Syndrome, but a lot of the sites say the same things over and over. But, as caregivers we have more questions than just the basic in’s and out’s. There are school issues, legal issues, understanding and getting your loved one an assessment, sensory Issues etc, etc, etc. If only there was a website where the top people in the industry shared their knowledge on video? Well, heck, here it is!

The Government of Alberta has an excellent website called Fetal Alcohol Spectrum Disorder Cross-Ministry Committee

I have watched many of these video’s along my journey with Fetal Alcohol Syndrome and have gotten a ton of my questions answered by the experts and believe me, these people really know their stuff.

THE GOOD: It has dozens of video’s targeted for specific groups from caregivers to social workers. It has video’s about assessments, schools, modifying an environment for a person with FASD, etc.

The BAD: Some of the video’s and presentations are, well, a little slow, but the quality of the information outweighs the slower parts. A lot of the video’s are long and I know it’s hard for some of you to even get a few moments by yourself, but these videos are really awesome and the information is really valuable. Also, some of the language is not user friendly, so what I do when I don’t understand a term that they are discussing, is go to www.MedicineNet.com or if you download apps on your phone, check out ‘psychterms’. It’s important not to get intimidated with the language they use. You can and will learn the lingo !!! It will only help you and your loved one in the future.

It may feel sometimes as though you are just ‘winging it’ and learning things on the fly, (or is that just me?) but really, we all do from time to time. There are resources out there, such as this website that is invaluable to us as caregivers in our quest to understand and effectively deal with such a complicated disability. And I hope you continue to use this resource whenever you can. But, most importantly, don’t forget that you are an expert on your loved one and with these video resources available to you, it will take you to the NEXT LEVEL and then you will be the ULTIMATE CAREGIVER!!!

Call To Action:

Share your experiences if any of these video’s helped you. Which ones did you like the best???

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5 comments

  1. Hi Jeff –
    Another great article. I’ve recently attended some training, so I know what you mean about feeling super psyched about trying some of the new strategies I have learned. I know that I am not a typical caregiver and am a staff at a home, but we have the same problem at the house. It is obvious which staff need a little refresher because they lose their patience very quick and definitely aren’t in tune with the kids. My question though is, as a staff member who is eager to learn and try new methods, how do I suggest to other staff they do the same?
    Thanks!

    • Hey Martee,

      Thanks for the comment, it really means a lot. Often times staff at the house are overworked and they may know what they need to do but because they don’t get respite themselves it can leave them with a short fuse. The best thing you could do is point them to the resources that I have available, if that’s not working get in touch with the manager of the house and express your concerns with them. What happens is if they are getting mad quickly then that means the kids in the house are also going to get mad easily and we all know how that works out. :}

  2. Jeff I cannot get the Alberta Cross-Ministry website to work now…do you know what is wrong with it and will it be up again? My folks want to watch those videos!
    Thanks, Nancy

    • Hey Nancy,

      I’m on it, if it’s not working the only thing I can think of is that it’s down while they put up more video’s. I know that they where planning on doing that.

      [UPDATE] Nancy I found away around it, go to there home page HERE and you can see the video’s

      sorry for the inconvenience.

      Jeff

  3. Thanks so much for all the info! We adopted a sibling group of 4 in March and 3 have been diagnosed FASD and anxiety. 2 of those 3 are ADHD and 1 is OCD. Everyday is a challenge but I research all I can. This has been the most helpful information I’ve gotten, thus far! Thanks!


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