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By Jeff Noble

This is one of the issues I hear the most about from caregivers both on my Fanpage and in person.

My client/kid/student with Fetal Alcohol is a master manipulator.  They are sneaky. They are always trying to get what they want.

Do you say that or does someone who works with your loved one say it? If so, I’m going to tell you why people with Fetal Alcohol aren’t Manipulating at all.

First, let’s take a look at what the definition of manipulator is in this context.
Definition: To influence or manage shrewdly or deviously. I had a chance to chat with Diane Malbin about this and her definition of manipulation is: Getting what one wants without considering the other person and/or through devious means”.

Now, if that’s what a manipulator is and does let’s take a look at the cognitive steps (what the brain has to do) in order to be a true manipulator. The brain has to analyze, integrate, plan, form concepts, figure out alternative outcomes including how to handle multiple objections from others. It takes an extremely high amount of executive functioning to be a “Master” manipulator, and from what we know about people with Fetal Alcohol is their executive functioning is extremely impaired. If you need a memory jog on executive functioning check a previous blog post,  The Difference Between IQ and Executive Functioning.

If someone with Fetal Alcohol was a good manipulator they would get away with it.  Your loved one would be living on an island somewhere enjoying their fruits of manipulation.   So, if it’s not manipulation then, what is it? And why do we get so upset when it appears they are doing this? I’m glad you asked.

The reason why your loved one can appear to be manipulating is because of needs they have that are unmet… and when the opportunity to meet one of these needs is presented to them they have a very strong reaction to it.  While speaking with Diane Malbin about this topic she said something profound, ‘the degree to which you see that perseverance is usually in direct proportion to the degree which they feel incompetent’. Let me explain.

Just like you and me, people with Fetal Alcohol have needs, but because of their deficits, they are unable to meet some of those needs on their own.  For example,  my foster guy had a need to build relationships. He wanted friends and social opportunities just like everyone else. Well, one place to start would be to look at school for friends.  Unfortunately, he couldn’t make any friends at school because of his academic impairments. He was never able to build any relationships at all. What happened most often was that he was alienated by his peers. So, when a perceived opportunity is presented to him to interact with his peer group, he is going to jump at the chance.

Here is another example:
One time my foster guy plows in the front door, eyes wide with excitement asking me to go for a ride with some people he just met not an hour ago at the store. He tells me he knows who they are and that they have been buddies for a long time and the other teens’ parents said it was OK to drive in their car as long as they put gas in it. So, not only did he want to go, but he also wanted 40 dollars. He said that would cover his share of the gas…Well, I know instantly that this is false. I have no doubt that he met some guys at the store, but I am sure when he said gas what he really meant was weed.  My natural reaction would be to get upset because I am insulted that he would try and pull the wool over my eyes and mock my intelligence. I mean, does it say SUCKER on my forehead?

What happens is that we get stuck on interpreting the superficial behavior and not the brain. We are unaware of what is really going on of because the behavior clashes with our VALUES and we get distracted. You see, values are beliefs and philosophies that we hold about life. While we were growing up we accepted a lot of the values of those around us until we got older and were able to define our personal values on our own. I remember my parents would often say to me “does it say sucker on my forehead” when I would make an attempt at manipulating them into something that was probably unsafe or silly. I was also taught that if someone was trying to manipulate me it was to mock my intelligence and as if the person is trying to take advantage of me and that it was wrong and bad! Whether the behavior is primary or secondary, we have extreme reactions because our values are so deep rooted that when someone clashes with them, we instantly get upset and want to blow our lid…but it’s in that moment we can’t think or ask the questions we need to in order to prevent the inevitable meltdown or come up with a better solution. In fact, when we get upset because of this massive clash, we dig in our heels and let the power struggle begin and we all know how that ends up.

So, the challenge  becomes not only  having the ability to take a breath in that moment when “The Clash” happens, but to also figure out another way to meet their needs in a safer and more rewarding way. So, what to do next time this happens?

Whenever I found myself in that situation I would go through this process.

Delay and Redirect. Sometimes if I could delay before giving an answer just long enough, I could think of an intervention strategy to try or hopefully slow down the impulse control. Also, knowing when to pick your battle and acknowledging that it could be so important to him and that he will be stuck on it and there will be no delaying or redirecting. We have to ask ourselves, ‘what are the real risks involved?’

If it’s something they want to do and you know the situation is not going to turn out well,
I would bribe with something better if the situation called for it, ie. wanting to go drive around
with friends he met only hours earlier… I knew my guy wanted a video game really badly and was going to get it for him anyway.  So, as he waited for my answer I pretended to get a call from our local video game store and got really excited like I had just got word that my pre-order was in, but I had to hurry before the store closed. By the time we grabbed the game and a bag of chips (had to be ketchup) and headed to a friends house to play, my guy had forgotten all about those other kids. I was lucky to be able to come up with a solution that fast and that worked and I was able to do that by taking a breath and figuring out a solution… not by getting upset and analyzing his behavior.

Moving forward my goal was to figure out what needs he had that weren’t being met and figure out a way to meet them in an environment that was conducive to his growth and education. The more I did that, the less time I spent getting upset.

CALL TO ACTION:  The next time you have a strong reaction to your loved ones behavior ask yourself  if it’s clashing with your values and what need is the person with Fetal Alcohol trying to have met.

 

 

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It’s no secret  that raising someone living with Fetal Alcohol Spectrum Disorder can be super frustrating.
Caregivers not only have to deal with their loved ones with life long organic brain damage, they also
have to deal with social service systems that often times have no idea about this devastating disability.

It’s because of this that caregivers are exposed to more frustration, which if not properly expressed can
cause everything from serious health risks to probable break down of the entire family system.

In this post not only am I going to share why I am making a weekly day to vent but I will also share the benefits
and importance of venting.  I am also going to share the better, more healthy way to vent and where you can do it, too.

Continue reading “Why I am changing Wednesday to Ventday!” »

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By Ann Kagarise

There are experts and there are experts. I don’t have a degree in genetics. I don’t have a PhD in anything. In fact, I don’t understand a lot of what goes on around me without an interpreter. What makes me an expert? My mom drank when she was pregnant with me. I might not understand the brain, but I am still an expert. I have lived with this FASD brain for over 40 years. Continue reading “All I hear is blah,blah, blah!” »

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By Tara Soucie

I can’t go. I don’t have time. Too much to do. He’s at it again. Argh! Sink is full of dishes. I am way too tired. Piles of laundry. Does this sound familiar? I bet it does.

When Jeff and I were primary caregivers for an FASD teenager – life took a backseat. More particularly, our health and for me, my waist

My relationship with food and distaste for the gym didn’t start when I was a caregiver, but how could battle my weight when I was just barely hanging on with work and life? Food was my friend and I just didn’t have time for the gym. That’s just the way it was. Continue reading “Saying Good Bye to Fast Food and Hello to Smart Choices: Your Journey to Better Health as a Fetal Alcohol caregiver.” »

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TOP 10 FASD BLOGS & WEBSITES

I would love to think that my website is the only information hub about Fetal Alcohol Spectrum Disorder and the treatment of the disability, but that would be pretty darn ignorant and nothing further from the truth.

I, like so many of you, searched the internet for hours and hours looking for information and answers about fetal alcohol syndrome and if there were other people going through the same thing I was as a caregiver.

The truth of the matter is that the only way were going to get the masses to understand our kids, is to be as educated as possible,and in order to help you with that, I’m providing you with The TOP 10FASD BLOGS & WEBSITES  that I read and use for my own growth and education about the madness that is Fetal Alcohol.  There are some great technical websites and blogs by other caregivers who are fantastic writers and even better entertainers.

So, without further a due, here are my top 10 favourite FASD website and blogs. Continue reading “Top 10 FASD Blogs & Websites” »

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What Can Testing Tell Us?

By Linda Rosenbaum

I was speaking yesterday to a mother whose child is in Grade 1 and is acting up in school. The kid can’t sit still and, in turn runs around the classroom.  He interrupts the teacher when she’s reading to the kids, he’s throwing stones in the playground, at both teachers and students.  He won’t follow directions, fidgets and gets out of his seat in class without permission.

Continue reading “What Can Testing People Living With Fetal Alcohol Tell Us?” »

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